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Never Home Free
Never Home Free
Once Ed got home from his 2nd hospitalization, he stopped eating and drinking, was constantly nauseated, and coughing constantly. The doctor for the hospital told us he didn’t need rehab at a facility, since he was doing so well and eating up a storm. They had taken him off an antibiotic he had been on, hadn’t finished the whole course, because they said they had tested him and there was no infection. Well, they were wrong. At home he not only refused food due to nausea, but started running a recurring fever, around 101.4
I wrote a lsit of my concerns and tried to hand-deliver it to the doctor. That was Thursday. (You can’t get him on the phone.) The clerk at the facility where he has office hours (Specialists in Health Care) wouldn’t take the envelope, said I’d have to talk with a nurse who would have questions, so I sat down to wait for a nurse to see me. An hour later, I suggested to the clerk that it would be a blessing if she could speed up the process, since I hadn’t slept more than three hours in the last 48, and still had to drive a half an hour to get home. She said “Well, you know, they are very busy,†and I said, “I have to leave.†And, yes, I had to keep slapping my face all the way home so I wouldn't nod off at the wheel.
My visit, however, did spark a cover your ass follow-up and his office called and an appointment was made for Friday at noon. Solveiga drove us. It was good they had taken him off oxygen at the hospital, which made everything easier. The doctor prescribed an antibiotic, trusting us that something was seriously wrong. But he was not in favor of a rehab facility saying going there would be risky too, since Ed could get a further infection. The visiting staff from the outfit providing it, was put back into place. Our lawyer came today with papers we needed to deal with, and Ed was up and at the table and alert for that. Meanwhile, he suffers from the fear of abandonment and misinterpreted my talk with the doctor that I was finding it difficult to handle things without sleep and that’s why I hoped he could recover in a rehab until he was stronger.
I am still handling middle of the night requests for help, but if nothing is going on that is life-threatening, I can deal with these. On the nights that involved going to the hospital, I didn’t get any sleep until the following night.
xx, Teal
posted on May 3, 2018 12:40 PM ()
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