The hemochromatosis gene test result has come back. I don't have the gene. I probably just ingest too much iron. I was eating Total which has 100% of the RDA of Fe (and Ca), taking a multivitamin with 100%, eating Luna bars (which have Ca as well) have 25%, etc., so I think I was getting something like 3x the RDA. Men don't need that much. I dropped the Total and switched multivitamins when I figured out what the Dr was after with his tests.
I think this eliminates hemochromatosis as the cause of my osteoporosis, but I don't know what is the leading suspect now.
I know that you're still searching within the medical field for answers and possible treatments and that's obviously really necessary but have you ever considered searching not only for alternative treatments but maybe an alternative diagnosis? Maybe started looking for a mind/body connection or a less conventional reason for the osteo, especially if you're coming up empty handed as the tests narrow things down? Maybe you're just searching in the wrong spots?
Or maybe I should keep my opinions to myself.