Janet

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Janet
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Julian's Mom

Parenting & Family > Hold My Hand: Part Two
 

Hold My Hand: Part Two

I am not an emotional eater. Not at all. If anything, when stress strikes, I tend to *not* eat. And yet, all evening, I have sat here at the table, tapping away on my mother's borrowed laptop and cyber stalking the doctor I'll take Julian to see on Tuesday, eating these chocolate cookie things we call "goober cookies." My Mom used to make them. Now I do. They are really good.

And now it's time for bed. Past my bedtime, in fact. So there's no time for a proper, catch up, "where the fuck have I been?!" post.

So you'll have to settle for these little tidbits until I can focus on a post long enough to sound at least somewhat coherent.

Poverty has caught up with me once again and I have cancelled my home Internet. My computer completely died and since I couldn't afford a new one, an Internet connection was pointless. I only have Internet for a few more days and after that will have to rely on my parents' stolen wifi and quick visits to Troy's house where it is impossible to concentrate on facebook status updates, let alone entire blog posts. But I'll be sniffing around here and there and with any luck, by Spring, I'll be up and running once again.

It's really just as well.

I haven't been much company lately.

It has been a most chaotic and crazy and tearful couple of weeks since my last post and all of these things have made me really, really self absorbed.

Julian goes to Kingston on Tuesday. This is huge. Gigantic. And with that, scary. And stressful. And oh my goodness, if you're the praying type, could you please say a prayer for my little guy? A prayer of thanks for what the Universe has already given us? A prayer that he will get a proper diagnosis and with it, proper supports? A prayer that this new doctor will get to the root of Julian's struggles and be able to decipher what he has been trying to tell us for almost four years?

And if you're not the praying type...well, you can still hope, right? I mean, I know that praying is reserved for the believers but hoping is still fair game, isn't it? So maybe... just maybe...you could hope that a good thing will happen for a little boy that needs it....

I have lived and breathed the preparations that have gone into this trip to Kingston. It's about three or four hours away and it will require an overnight stay for the girls, Troy, Julian and I. I have faxed off every document I could get my hands on. I have filled out psycho forms and am ready to fax those, too. The hotel is booked. I have a borrowed GPS for the drive.

And I have read.

Oh my good Dog, I have read like there is no tomorrow. Right now I am reading Temple Grandin's "Thinking In Pictures" and her mother's book, "A Thorn In My Pocket".

I have pulled Runes.

I always get the warrior.

I have dreamed of having that symbol (an arrow) tattooed next to the word "Courage" which is already inked into my right forearm.

I have woken, after that dream, to see an arrow drawn on the dry erase board on the girls' bedroom wall.

The warrior.

There has been much going on in between.

Stuff that has made me laugh. And a lot that has made me cry. And I have said, many times over, "I can't do this anymore."

But all of those things have seemed somehow insignificant in the wake of this upcoming appointment. And I have felt a sort of resentment when one of these other stressors have required my attention.

Maybe what I need now, more than anything else, is a prayer for strength. For the courage to find my inner warrior, one more time, for my little guy. I'm not a natural warrior. I'm more of a "flight over fight" kinda gal. So maybe that's what I'll ask for....

Strength.

It's funny, isn't it? The silly things that stand out.

My last post had the same title as this post in part because I have listened to that Akon and MJ song literally dozens of times since that first time in the music store that is now closed.

Troy bought it for me.

A few days before Christmas, he was listening to some shitty mixed CD his sister gave him. I was serving dinner. He disappeared downstairs and came up and put the MJ CD on without my noticing (dinner is a very hectic time in this house).

I was standing at the counter when I heard the unmistakeable sound of Michael's voice.

And I lost it.

Like sobbing, crying, blubbering, can't catch your breath, losing it.

I have listened to that song over and over again ever since. It has become my talisman on this journey.

Hold my hand.
Baby, I promise that I'll do all I can.
Things will go better if you just hold my hand.
Nothing can come between us.
If you just...
Hold my, hold my, hold my hand.

I seemed to have lost myself...or a piece of myself, anyway...along this journey. That's that thing that parents of special needs children aren't so quick to tell you. It seems almost necessary to lose yourself in order to become the warrior they need. Or maybe not. Maybe that's just me.

But for me, it has become nearly impossible to hold onto any remnants of who I used to be in the light of this next stage.

Hm. I just read that sentence over again and realized that maybe I haven't lost a piece of myself. Maybe I needed to shed that skin of the former me in order to become who I am today. The mother that Julian needs at this point. And maybe I'll be a better, changed person for having lived this sordid tale.

Hope springs eterenal, as they say.

Some day, I will sit here and write the whole thing out. It's a bit like a crummy Law and Order episode. Or maybe even a CSI or Criminal Minds. Some day, maybe I'll turn it into a book.

But for right now, I will just try to access that inner warrior.

I know she's in there.

She just needs some sleep.

On that note...

Good night all.

posted on Jan 13, 2011 8:38 PM ()

Comments:

Praying and hoping and thinking for you and yours...
comment by catdancer on Jan 22, 2011 11:58 AM ()
comment by crazylife on Jan 16, 2011 8:46 PM ()
You go gettum girl
comment by augusta on Jan 16, 2011 10:28 AM ()
Thanks...eek!
reply by juliansmom on Jan 16, 2011 7:04 PM ()
I realize this is trite, but you must take care of yourself, as well as Julian and the girls. Sometimes, life can be overwhelming. Having "true grit" nowadays is the catch-phrase. I think you have what it takes to get through this period in your life. You DO have the strength. The warrior IS inside of you. And I am channeling all the powers within me toward you. At this very moment, I'm clenching my mouth and teeth, furrowing my brow, and forcing good thoughts your way. Do you feel it? Now, go get 'em!!!
comment by solitaire on Jan 15, 2011 7:20 AM ()
I must have felt it...I logged on again, didn't I?

I'm sorry, but the fact that you were "forcing good thoughts" my way really made me laugh.It is my sincere hope that you didn't rupture anything with all of that forcing.

One of Julian's workers (my favourite one, actually) called me a "trail blazer" last week and went on to say that everyone in her office, including herself, were "in awe" and "amazed" by me.I know that she meant to compliment me and instill some extra confidence in what I am doing but it actually terrified me to hear the comment. I'm much better at following someone else's lead. Perhaps that is the lesson here? To learn to lead?
reply by juliansmom on Jan 15, 2011 9:37 AM ()
Julian will be fine - and so will you He is in so many peoples thoughts and prayers.
I don't think you have 'lost' any part of yourself - you have merely added, another part - The Warrior 'you'.
A tattoo is a good idea - but make sure you have it done in a 'clean and hygienic' shop (don't be tempted to try doing it yourself - the last thing you need is blood poisoning). It would act as a reminder 'to be strong' if you ever feel at a 'low' point.
comment by augusta on Jan 14, 2011 10:45 AM ()
I have several tattoos, including the word, "Courage" in script. I tend to go to the same shop over and over again because the people are so wonderful (and yes, it's very clean and health board approved).It is on the inside of my left forearm...kinda like a cheat sheet.
reply by juliansmom on Jan 14, 2011 4:39 PM ()
I agree with greatmartin. yeah, exactly what he said!
comment by kristilyn3 on Jan 14, 2011 10:38 AM ()
"Martin and Kristy want to remind you to breathe"...
reply by juliansmom on Jan 14, 2011 4:38 PM ()
I've always thought you should write a book Janet.
comment by meranda on Jan 14, 2011 7:28 AM ()
And I have always thought you were one good lookin' lady. Are the two connected? No. But it's still worth mentioning, no?
reply by juliansmom on Jan 14, 2011 4:37 PM ()
I am a great believer in positive thinking. Convince yourself this visit
will unlock at least one door. We will all send good thoughts your way.
Sometimes we don't recognize the good when we see it. copyright your
blogs, they will make a great book.
comment by elderjane on Jan 14, 2011 6:56 AM ()
Thanks, Jeri.It's funny that you should mention doors because Temple Grandin was really, really big on door imagery and I've been trying to adopt that. If she encountered a door that wouldn't or couldn't open she would do everything she could to get through it....and conquer the obstacle.
reply by juliansmom on Jan 14, 2011 4:36 PM ()
Okay, I'm praying and hoping both, sending many good thoughts your way every day. We are all going to miss your posts so much, you have no idea, because you have such a wonderful way of mixing sad and scared and funny and strong together, it's really interesting reading. So don't forget about us, come back when you can and we'll all be here still debating religion and talking about our house pets.
comment by troutbend on Jan 13, 2011 10:02 PM ()
Laura, you have just given me my first laugh in a long time.So thank you for that...politics and house pets, indeed....

I will be back, I can promise that. I miss having a daily escape from reality but it has been more necessary to completely submerge myself in reality to get through this next phase.

I won't forget.And thanks for the hopes and prayers.
reply by juliansmom on Jan 14, 2011 6:42 AM ()
Take a d-e-e-e-e-e-p breath--slowly let it out--Julian is going to be okay and things will start going your way--okay breathe!

Is there a library close by so that you can have access to a computer?
comment by greatmartin on Jan 13, 2011 9:01 PM ()
I live in the middle of nowhere so I have to travel into town to use the library, which has some really weird hours in the winter. I will be able to use other people's computers here and there to tide me over until I can afford a new one for myself and the Internet connection to go with it.

I think I will write myself a little note that says, "Martin wants to remind you to breathe" and keep it with me in my pocket. Or perhaps *that* should be tattooed next to the courage....
reply by juliansmom on Jan 14, 2011 6:44 AM ()

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