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Julian's Mom

Parenting & Family > Tricks and Treats and Stuff in Between
 

Tricks and Treats and Stuff in Between

Nothing like a little comment about a young child being killed by a pit bull to get me into some hot water I wasn’t expecting, eh? Just when I let my guard down and thought of mybloggers as my escape….

Now I’m thinking of how many people I have stopped Julian from biting (although his teeth could never do the damage a dog’s could…at least not as quickly!) and can’t help but wonder if I could have allowed him to bite by saying that he was aggravated…that IS the only time he tries to bite people…

Nah…there’s probably paperwork involved and I fill out enough forms about Julian.

I can feel exhaustion slowly starting to creep in after a long and cold night of trick or treating with the kids and another sleepless night with Julian. Some loser was setting off firecrackers last night and I am sure I don’t have to tell you what kind of effect they had on my little guy. He wasn’t the only kid crying but he was, as far as I could tell, the only kid covering his ears and shouting, “SHUT UP! SHUT UP! SHUT UP! STOP! STOP! STOP!” Up until that point, we had been doing alright. My parents (thankfully) came out with us and Julian was able to go to the door with his sisters and an adult, even saying “trick or treat!” just as we had rehearsed and signing “thank you” after he received his treat. It took him a long time to walk away from the houses, though, and I still haven’t figured out why. He seemed to get distracted…or rather unusually focused…on something that none of us could determine.

But obviously after the fire cracker incident, we had to start making our way back to the car. We let the girls trick or treat as we went, with my Mom and I taking turns carrying Julian, but I still felt really badly for my daughters. They were being such good sports and trying really hard not to be frustrated by their brother. That somehow makes it harder…

Next year I think I will split the kids up and send my girls with either my parents or their Dad and just take Julian myself. I hate this idea because I wouldn’t want to miss out on trick or treating with the girls. Maybe I’ll look into Halloween parties next year, instead. Although that probably wouldn’t work, either since those parties tend to be FULL of decorations and loud sounds.

Meh…enough about that.

All night, Julian woke up, crying and rocking back and forth and saying, “I don’t firecrackers! I don’t like firecrackers! Snap! Snap! Snap!”

I just said, “enough about that”.

Maybe I should talk about dogs again instead.

A lot of people asked Julian if it was his first time out. Nope. His fourth. He’s just really little for his age. They would usually look surprised (I’m used to this) and say, “well, have a good time little dragon/lizard/froggie/monster”. It made me laugh but just served to further confuse Julian. He was already fucked up about “being Barney” (I can’t tell you how many times he cried, “but I’m not Barney! I’m Julian!”) and having to be a dragon/lizard/froggie/monster only frustrated him more. He was having an identity crisis! Finally, after a few houses like this, Julian took matters into his own hands and when somebody called him a frog he said, rather assertively, “I NOT a frog. I a Julian.”

A lot of houses were dark which is likely why the walk seemed so long. The kids had to pass two or three houses before they got to one giving out candy. Sometimes you could see the blue glow of the TV and I just imagined someone sitting in a dark room, watching television and I couldn’t help but wonder why…My Dad went on a big rant about people turning their lights off and how much he used to love seeing the little guys in their costumes on Halloween and it was the one night a year when he missed living in town (they live WAY in the middle of nowhere and no longer get any trick or treaters) and he couldn’t understand why people didn’t just enjoy life and the joy of giving.

I think less kids go trick or treating. Seems that way, anyway, with the whole peanut and nut allergy epidemic and safety concerns, etc. more people send their children to Halloween parties instead. Which once again leads me to wonder if that is what would be best for next year but still begs the question…what would I do with Julian?

He already misses out on so much. And I guess that’s really why I feel like crying in front of this computer monitor…because last night we took a step out of the bubble we live in most days and into the big, bright world and whenever we do that, it serves as a reminder that this world was not built for my son. Or maybe my son wasn’t built for this world? Regardless, it is moments like these that threaten to rip my heart out of my chest, the pain feels that real.

It always makes me work that much harder for him…to advocate for him…to work with him and the people in our lives…and solidifies my belief that in my total acceptance of my son, I will be better able to prepare him for the world he lives in.

And of course, the tears prickling at my eyes right now are also sadness for him. That the whole wide world will never completely accept him. That his Dad doesn’t accept him.

It’s far easier for me to be angry with Troy…over not letting Julian wear pajamas or rubber boots in the summer or over his annoyance when Julian or I sign a word instead of saying it or his lack of communication with his own family that seems to go hand in hand with his lack of advocacy for his son to the same people…because anger can always disguise the sadness. The sadness of knowing that all of these things stem from Troy’s lack of acceptance of the child he helped to create.

It is easier to rip Troy a new asshole over and over again in my head than to admit the truth to myself and allow myself to cry.

This is my most depressing post ever.

I really should have just talked about dogs.

posted on Nov 1, 2010 11:34 AM ()

Comments:

FYI, long story short: Kids were between 5 and 15 when she "decided" she was depressed, and/or her father abused her, and/or I was the "antichrist". Toss in a few other reasons, and out the door she went to "find herself". She never returned. I divorced her a year later (although it took two).
comment by solitaire on Nov 4, 2010 5:50 AM ()
Hm...so when she found herself she loved it so much she didn't care to share?Like I said, I can't imagine but understand your side of it. What's a parent to do but roll up their sleeves and make it happen for their children?I thin, perhaps, you have restored my faith in Daddies.

I have been called the anti-christ. I take it as a compliment.
reply by juliansmom on Nov 4, 2010 7:07 PM ()
One thing I expected to enjoy was this tradition of Halloween. Alas no. I too live out of town and we don’t get any of the little dressed up heathens. Funnily enough we get plenty of people bashing their bibles at us tho.

You sit on your porch with Julian and you send your girls with their grannyparents. Or vice-versa Or. You and your parents tag-out halfway through the Halloweenie gig. You get to do and see it with your girls and spend some of it with your boy. Would/could that work?

I think you and Julian are absolute geniuses for doing the signing. Communication--isn’t that what parenthood is much about.

comment by kjstone on Nov 3, 2010 10:28 AM ()
When are we going to find something to bash bible bashers back with?!

Your Halloween solution is fantastic! I think it would work to trade the kids off or even just allow Julian to only go halfway. I've also considered "sensory" breaks for him along the way somehow because in hindsight, even in the dark, Halloween is pretty overwhelming! Thank you for the terrific suggestion!
reply by juliansmom on Nov 4, 2010 7:10 PM ()
Raising kids ain't easy. I had four to raise by myself (wife/mother walked out). But I got the hint about writing upbeat blogs.
comment by solitaire on Nov 2, 2010 6:29 AM ()
Wait...what hint about writing upbeat blogs?

She walked out? Wow. I can't imagine that. Although I do know what it feels like to have someone walk out...that sucks...
reply by juliansmom on Nov 3, 2010 10:00 AM ()
I can empathize but you have some great blessings. Julian can communicate.
He has you for a Mom and his sisters understand. He is never going to be "normal" but he does have a great capacity for intellectual thought. Social skills can be learned. I would home school him and keep stimulus
low in his life. You have a life too and if you can get respite care, go
out with a girl friend and do something for yourself. In the long run
he will benefit from a happier mother.
comment by elderjane on Nov 2, 2010 6:15 AM ()
You are, as always, completely and totally right.My Mom is pretty great but she isn't as supportive as you are of your daughter. Once I "got this out" I felt a lot better. I am human, have my moments, but overall know that I am blessed.
reply by juliansmom on Nov 3, 2010 10:02 AM ()
As if our lives were cliff hangers of excitement. Tomorrow, however, we are checking into a Strip hotel for three nights, so maybe I'll have some good stories from that.
comment by troutbend on Nov 1, 2010 10:27 PM ()
Oooh, I can't wait!Everything I know of Las Vegas, I learned from TV.So I would relish in some stories.
reply by juliansmom on Nov 3, 2010 10:03 AM ()
(((hugs))) Do you have malls near you? Around here each store gives out candy and stickers etc. at the mall on Halloween. There have been a couple of years that we did this with the kids instead of going house to house. Not sure if it's an option, but thought I'd suggest it. I wish I knew what else to say. I'm listening and have faith in you.
comment by firststarisee on Nov 1, 2010 6:19 PM ()
We do have malls....I have never thought of that.I think I should have mentioned that the trick or treating was actually a LOT better than it could have been.
reply by juliansmom on Nov 1, 2010 6:35 PM ()
It will get better and I will keep on saying that until you believe and/or until it does!!!
comment by greatmartin on Nov 1, 2010 3:32 PM ()
Aw, thanks Martin.I really should blog more when I'm in a good mood but those are the times when I want to eat a freezie or chill outside with my little ones. I have faith in what I'm doing with my son and faith that he will be successful in life...no matter how he ends up defining successful...and that eventually he will find something that satisfies his brain and makes him happy.
reply by juliansmom on Nov 1, 2010 6:01 PM ()
About biting: I had a sister who was a biter--when we were children, if you crossed her, you might get bitten. She was famous for it. So one day a woman visited the house bringing along her daughter, and she and my sister got into a fight, and the girl bit my sister hard on the arm. No one had ever bitter my sister, and that put an end to it after she had a taste of it herself!
Now I'm gonna say something you may not like. Tenderness and sadness and pity for Julian isn't gonna help him. I know about that. Been there, Done that.
When you're gone, he will be in a world where he will have to learn to face life as independently as possible. I hope as he grows older, he will be in a school that fosters independence as much as he is capable of. You're in a slump right now, in deep, immersed, overwhelmed. Please try to find a support group to bolster your spirits and find kindred spirits to talk to.
comment by susil on Nov 1, 2010 12:25 PM ()
Thankfully, Julian only bites as his last warning to someone. He used to do it a LOT more before he had any verbal skills. Now it only happens when someone has really crossed the line with him and I can stop him by removing him from the situation (like someone touching him or picking him up or making a repeated loud sound) that has aggravated him so that he can't hurt anybody. Behaviour is communication to children with poor verbal skills. Heck, behaviour is communication to everyone!

I don't pity Julian. I don't pray for a "cure". I feel strongly that by supporting him and working with his CP and his Autism and accepting his limitations instead of forcing him to "be like everyone else" he will go miles and miles ahead of what was predicted for him. I've already seen great improvements over the past year...life is not as much of a struggle for any of us because we accept him.

What makes me sad is that try as I might, I can't get his father to feel the same way.So life has to be a struggle for both of them and my daughters, too when they're together.
reply by juliansmom on Nov 1, 2010 6:07 PM ()
Oddly enough, I am going to express a certain 'simlarity' with my husband & I, and our Rottie (Chloe) and you, Troy & Julian. I trained Chloe myself and she listens well to 'me'. I have her commands, phrases which she knows and reacts to and 'sign' language.
Sometimes, when he wants Chloe to do 'something' (which she can do & does for 'me') she wont. I try to explain to my husband that she will, do it - - 'if' - - he gives his command in the way 'I' trained her . . .
it was hard work 'convincing' him . . . but, slowly he is realizing this. He just wanted the dog to 'listen' to 'him' the way 'he' wanted to tell her - - when all he was doing, was 'confusing' her.
I wonder, if this is what Troy, is feeling toward you and Julian 'signing' and understanding, each other? I may well be wrong, but it is possible. He may feel a little 'jealous' towards the rapport you and your little boy have between you both.
p.s. my eldest son was about Julians age, when I had bought him a pair of 'green wellies with frogs on'- he wore them constantly and even to bed for the entire winter & summer! I used to have to go up to his room to remove them each night when he was asleep
comment by febreze on Nov 1, 2010 12:13 PM ()
Couldn't I just punch Troy instead?

Troy hasn't been supportive of his children for a long time, least of all Julian. For years, literally, I tried to include him in Julian's appointments with doctors and workers as well as get him "trained" to do exercises and such. That was before Autism, when we were just working with the Cerebral Palsy.

Troy was living two hours away when Julian began to exhibit strong indicators of ASD (I say "strong" because hindsight being what it is, looking back I can see signs of ASD from his birth on)and I used to call him and beg him to come to see Julian, to help out, and even just to keep him updated. He didn't and missed a year of Julian's life and progress.

I think you might be right about the jealous thing...I am so knee deep in everything because I *had* to do it by myself and now it's harder for him to get a toe in.
reply by juliansmom on Nov 1, 2010 6:14 PM ()
It sounds like you guys had a really rough night. I think that it is great that you do everything you can to help Julian have traditional experiences. Your plans for next year might prove helpful for the girls.
I think you are right about how fewer kids seem to do the trick-or-treat thing. I don't know if it is modern paranoia or people just would rather go to parties, but it makes me a little sad. It used to be a fun part of growing up. So many people also don't give out candy, like you described.
Keep your chin up! It can be difficult to stay upbeat when times are tough. You are a wonderful person and a geat mom!
comment by lunarhunk on Nov 1, 2010 11:46 AM ()
I'm so glad you said that, AJ! It makes me sad, too!

I'm going to blog more when I'm happy...I swear...because Halloween wasn't that bad. It was actually better than I thought it was going to be. Just that loser and the firecracker...
reply by juliansmom on Nov 1, 2010 6:15 PM ()
awe... I am sorry you are so sad! You do have three beautiful kids though, that is a blessing, even though you are feeling overwhelmed... And about the dogs - kids and dogs should NEVER be left together unsupervised. It's that simple really...
comment by kristilyn3 on Nov 1, 2010 11:40 AM ()
Oh my God! Enough about the dogs!

I would feel happier if other people posted articles about their more exciting than mine life...hint, hint, nudge, nudge.
reply by juliansmom on Nov 1, 2010 6:17 PM ()

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