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Julian's Mom

Life & Events > Ten Random Thoughts
 

Ten Random Thoughts

It has already been a very long day.

And it’s not over, yet.

I started a blog post yesterday afternoon after a very disappointing home visit from Julian’s physiotherapist and an even further disappointing phone conference with his behavioural consultant, but it was “too far gone” as they say and I scrapped it.

My head is swimming as I write this…a combination of fatigue and desperation threatening to take over so rather than go on and on, as is my usual style (ha), I think, instead, I’ll go old school, point form, janetk style…

Random thought number one…

I can’t remember the last time I had a good night’s sleep. Well, that’s not entirely true since I do remember sleeping during my last kid-free, Nicolas Cage and bad art weekend. What I mean is that I can’t remember when Julian’s latest bout of bad sleep disturbances started. I have been searching for the reason…reasons?…for well over a week now but have not been able to solve the riddle. And let’s face it…it could be ANYTHING.

Random thought number two…

I drove home in the fog yesterday evening (Troy was here to see the kids and made like a leaf and fucked off), listening to Michael Jackson’s, “This Is It” and thinking about how last Halloween, the kids were with their Dad and I went to see the movie, “This Is It” for the first time. I loved Michael. Really, really loved Michael. I even met him once… well, sort of. And there was something about the combination of the mild weather we’re having and the fog of last night and Michael’s song that made me want to cry.

Random thought number three…

I really need to stop eating the mini chocolate bars I bought for Halloween. Really need to. For obvious reasons. Want to know the really sad thing about those chocolate bars? I don’t even get trick or treaters out here in the boonies.

Random thought number four…

Randy solitaire’s letter to his father really got to me.

Random thought number five…

Julian has been having a terrible day. Terrible. All behaviour is communication but like his most recent bout with insomnia, I’ll be damned if I know what he is trying to communicate to me. My life is reduced down to trying, in vain, not to upset the apple cart…which means standing at the kitchen counter, trying to decide which plate to serve his cheese and mustard on, Thomas or Diego, because if I choose the wrong one, he’s going to freak out but if I ask him outright, he’s likely to freak out since he has currently “lost his words”.

Random thought number six…

I need to buy some Pediasure (aka “Teddy Bear Drinks”) because Julian has stopped eating anything but cheese or mustard and when that happens, I know that a bout of completely not eating is just around the corner. I feel like a terrible mother for not being able to find room in the budget for the expensive little cans, especially with snowsuit and winter boot season upon us.

Random thought number seven…

In keeping with the Julian thread…I finally found Barney’s Halloween Party on DVD, thanks to my middle daughter, Erica. I have been playing it over and over again for Julian in the hopes that he will have a better concept of what Halloween is and what will happen, etc. Barney is good for teaching all children, but especially those with development delays or special needs. There is something about that guy…it is the only TV that a developmental worker will actually recommend. So far, Julian will only talk about one of the kids who was wearing a hat that covered his face. It’s okay to laugh. I still have four or five days to get the concept into him.

Random thought number eight…

I made Troy cry last night. And I didn’t even hit him!

Random thought number nine…

I vow to start my Christmas shopping early this year. I vow to get started on it at the beginning of November. Well, middle of the November at the latest! My plan is to start picking up little things here and there and setting them aside so that when December rolls around and it starts to get crunchy (keep in mind that Canadian Thanksgiving is in October so we don’t have anything but Christmas from Halloween on) I won’t be panicked. I figure this will also help me afford Christmas. On the bright side, I have a very, very short Christmas list this year. I really only have to buy things for my children and a few other people here and there.

Random thought number ten…

My daughter has a lot of homework to do tonight. That means I have a lot of homework to help her with. My daughter has some special needs of her own. I’m not sure why I don’t blog about them. Homework time is very frustrating for her and me, too. I’m open to suggestions as to how to make it easier for her to concentrate without actually having to lock Julian in a room.

BONUS random thought number eleven…

Have you ever watched the show, “Big Bang Theory”? I hate it. I would like someone to explain to me why so many people think it’s funny.

I will end this post with a quote from Ani Difranco, which is just as random as these thoughts…

“I will maintain the truth I knew naturally as a child. I won’t forfeit my creativity for a world that’s all laid out for me. I’ll look at everything around me and I will vow to bear in mind, that all of this was just someone’s idea. It could just as well be mine.”

posted on Oct 26, 2010 12:46 PM ()

Comments:

My kids have only ever watched one Barney video, the safety one.
They LOVED it and watched it over and over and would sing the
clean up song and they actually LEARNED safety stuff better than
I could teach them. Who knew that annoying purple dino was
so helpful?
comment by crazylife on Oct 28, 2010 8:17 PM ()
I know, right? One of the first things Mary (infant development worker) said to me was, "get some Barney". Up until that point, I just thought he was annoying.Julian sings the clean up song *every* time something needs to be tidied.
reply by juliansmom on Oct 29, 2010 6:27 PM ()
Trailer Park Boys…we have only just started watching, we like it, especially the guy with the coke-bottle glasses, right down to the bottom lip jutting out. He reminds us of a fella around here, only the TPBoy has more common sense.

Hmm. Or perhaps you “hit him” with some truth?
comment by kjstone on Oct 28, 2010 6:26 PM ()
I *did* hit him with some truth. Didn't feel quite as good as actually decking him, though.

One year Troy dressed up as Bubbles from the Trailer Park Boys. It was scary how well he pulled it off.I am fond of Ricky, who is credited with, "Make like a leaf and f*ck off*.
reply by juliansmom on Oct 29, 2010 6:25 PM ()
Don't know if you know Tragicbeauty--she blogs at blogster, has a page on facebook--seems you are both going through the same thing--I'll give her your URL address on this post.
comment by greatmartin on Oct 28, 2010 6:12 PM ()
Thank you, Martin.
reply by juliansmom on Oct 29, 2010 6:23 PM ()
You have certainly got your work cut out I think a confining bed, is a good idea too. You know that Julian is safe plus, it would help you to be with the other children too
comment by febreze on Oct 28, 2010 12:19 PM ()
It's not always such terrible work...just lately it's been more work than normal, even for us.I'm thinking about looking into a confining bed for Julian, however, he has a tendency to stay in his bed and scream and bang his head against the wall and bite himself, etc. so I'm not sure how much help it would be. We are meeting an OT tomorrow and I'm hoping she has some suggestions.
reply by juliansmom on Oct 28, 2010 4:44 PM ()
I'm glad to hear you slept well at least one night It must be so hard for all of you when poor Jullian loses his words and we both know how insomnia feels. I really hope that he is sleeping, eating and communicating his needs soon. You are so strong! I don't know how you do it! Other than...you have to, right? Last random thought by me: I always ed Barney! and Riss did too!
comment by firststarisee on Oct 28, 2010 9:51 AM ()
As usual, you're right!I do it because I have to. And Julian is worth it...but mostly because I have no choice in the matter.

So many people *hate* Barney! I'm glad to find that you love him, too! I think he's pretty great...all three of my kids have loved him...but Julian seems to love him the most.
reply by juliansmom on Oct 28, 2010 4:42 PM ()
Although I evidently "touched" you (and I didn't mean to--just stating the facts), you and I live in different worlds. For example, I love Big Bang. Maybe it's the nerdy characters. Or Penny! And, I've never heard of Trailer Park Boys. I am familiar with Michael and Ani, however! I have no suggestion on isolating Julian, nor sleep recommendations. Sorry.
comment by solitaire on Oct 28, 2010 7:08 AM ()
Ah, but the mutual love of brussel sprouts will save the day!

I shouldn't have said that I hate the show Big Bang Theory. I just find it really hard to watch. Sheldon (I think that's his name, right? Not the guy who used to play David on Roseanne...the skinny dude)reminds me *so* much of grown up version of Julian. It's basically like a whole show dedicated to making fun of people with Asperger's Syndrome. But no judgement...I'm biased. Maybe like how my Mom, who is a nurse, could never watch medical dramas like ER, etc.

I think your post got to just about *everyone*. It's your reality and so it makes sense that to you you're just giving the facts. But to all of us, it was pretty heart wrenching. Brought up a lot of stuff I thought I had buried long ago.

And the Trailer Park Boys are Canadian so I'm not too surprised you've never heard of them.
reply by juliansmom on Oct 28, 2010 4:40 PM ()
We loooove Trailer Park Boys! Where in the *#$@ is Randy's Barbecue? or something like that. I have my own huge bag of fun size candy bars to ignore. And it's very difficult; freezing doesn't help, seems to make them even more compelling.
comment by troutbend on Oct 26, 2010 11:12 PM ()
When I was first married, Troy and I discovered the Trailer Park Boys and started watching them. It's amazing that it's been made into movies, used in music videos, etc.When I was a kid, Jonathan Torrens (J-Rock) had a talk show on CBC that I used to watch...
reply by juliansmom on Oct 27, 2010 6:25 AM ()
I like Ani Difranco. I like your take on making like a leaf. I wish I could take you out and away for a little bit!
comment by kristilyn3 on Oct 26, 2010 1:01 PM ()
I thought you might be an Ani fan. I adore her.

I can't take credit for the leaf comment...it's from the Trailer Park Boys.
reply by juliansmom on Oct 26, 2010 6:04 PM ()
Power to you. Eric roamed the house at night and bit his brother and his
sisters. He sleeps much better now that they have found a bed that locks
him in which was originally created for Alzheimer's patients. I am not
suggesting that for Julian but sometimes being confined makes them feel secure.
comment by elderjane on Oct 26, 2010 12:57 PM ()
It is a fine balance...his sisters and brother need to be protected, too.I suppose a confining bed would help on both the sleep front and the homework one, too.
reply by juliansmom on Oct 26, 2010 6:05 PM ()

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